Sunday, November 14, 2010

People 'denied' die at home wish

Too many people are dying in hospitals and care homes, and not at home the way they want to, says a report from Demos.

Of the 500,000 people who die each year in the UK, the think tank found only 18% die at home, yet 60% of people surveyed would like to.

Investing in community-based end of life care would also save the NHS money in the long term, the report says.

The Department of Health is reviewing funding for England. Services in the rest of the UK are funded locally.

The report, entitled Dying for Change predicts that by 2030 more people will die in hospital (65%) and fewer people will die at home (just one in 10 people).

In 10 years, Demos predicts that 20% of people will die in care homes, a figure currently at 17%.

Yet a poll of 2,127 people carried out as part of the report shows that two in three people would prefer to die at home, surrounded by family and friends.

"Start Quote

People are dying over a longer period, losing first their memory and then their physical capacities..."

End Quote Charles Leadbetter Demos

This equates to more than 190,000 people dying in hospital each year when they would rather be at home.

Not everyone who dies in hospital knows they are going to, but many do.

Two in five people who die in hospital do not have curable conditions and most people will be ill for six years before they die.

It is estimated that 20% of hospital beds are currently taken up with caring for people who are dying.

Funding injection

The report says that investing �500m more a year would allow more of these people to die at home or with support in the community.

Setting up new places for people to die close to home, training volunteers to support the terminally ill, a 24-hour nursing support service and an "end of life telephone help line" are all suggestions the report makes on how this money could be spent.

It also proposes setting up a national "hospice at home" service to help support people dying at home.

Demos claims that making this investment would result in fewer and shorter hospital admissions, helping the NHS save money in the long term.

At present, around �20bn of NHS services is spent on end-of-life care.

This is forecast to rise to �25bn in 2030.

Charles Leadbeater, co-author of the Dying for Change report said: "It's not just that we're living longer; part of this means that people are dying over a longer period, losing first their memory and then their physical capacities in stages.

"If we put in the right kind of supports for people to cope at home, many tens of thousands of people could have a chance of achieving what they want at the end of life; to be close to their family and friends, to find a sense of meaning in death."

Care services minister Paul Burstow said the government wanted to ensure that the care people receive at the end of life is "compassionate, appropriate and gives people choices in where they die and how they are cared for".

"Identifying people approaching the end of life and advance care planning is an essential part of this," he said.

"We are consulting on extending patient choice and want to move towards a national choice offer that supports those who wish to die at home."

David Prailll, chief executive of the charity Help the Hospices, said the report would help to stimulate public debate.

"It also makes some very interesting suggestions about specific practical steps that could be taken at a national level and these merit deeper investigation."

"Seventy per cent of hospice care takes place in people's homes and a growing number of hospices - already over two-thirds - provide support to care homes to make sure residents get the palliative care they need," he said.

BBC News website readers have been sending in their reaction. Here is a selection of comments:

My husband was terminally ill with Angio Sarcoma at Guy's Hospital in August 2004. The doctor came to tell him that the cancer has spread to his other lung too. My husband said he would like to go home and yet the doctor made me feel that it would be more suitable if he stayed in the hospital. I did not understand why it would be more suitable for him to stay there. He died four days later. He was so sedated that he died without us getting a chance to say goodbye to him. I still keep worrying that I let him down by not insisting on him coming home. I still have not got over the way he died. It was so impersonal. Ranjna, London

My father died at home several years ago, which was his wish. He had been in and out of hospital and spent time in a local hospice, but it was at home where he wanted to be, and where my mother could best care for him. The GP was superb, there was a district nurse visiting regularly to help us prepare for his death, and although desperately sad for the family, it was what he and my mother wanted, and they were at peace with that. Penny, Dorset

I lost my mum and although she was totally dependant on me in the last years of her life, when it came to the end she died in hospital. I suppose because I couldn't bear to be alone when she died, not knowing if I was doing everything to make her going as painless as possible. I know in my heart that she would have forgiven me taking her in hospital but it is so hard for the loved ones to make that decision. We all, in an ideal world, would like to just go to sleep in our own bed at the end but real life isn't like that. Daisy, Reading

My mother died today in a care home. In her last few weeks she has needed continuous care and kindness to keep her clean, as she was incontinent. A hoist was needed to raise her weak body and a special bed was used to prevent bed sores and aid her in being fed. It is a nice idea that we should all die where we want to but life is not like that. My mother would also not have wanted to die in a care home but as it happens she had dementia and didn't know where she was. She had the very best of care, the bedroom was equivalent to her bedroom at home, so what is wrong with that? People would not get 24 hour care if they stayed in their own homes and the expense would be enormous if they privately hired a 24 hour a day carer. Christine, Portsmouth

I work for the NHS and it is very frustrating that patients can't die at home because of the paperwork. Sometimes it is also very dependent on your postcode. If your GP is in one PCT and you live in the next borough, you are not entitled to services as they do not receive from that borough. I speak from experience as I have recently had battles with two PCT's in getting services so that my patient could die at home. One solution given to me was that the patient changes his GP, but this is not always suitable when you have been with a particular GP and have built a relationship. As a health care professional I try very hard to give my patients the choice of dying at home. Suki, Harrow

My mum passed away only a couple of months ago and it was her wish to die in hospital. She was terrified of dying at home for many reasons. I have to say that the hospital was superb and cared for her wonderfully and I can also say she died feeling safe. Whilst many people do wish to die at home, it should be realised that many people feel safer in a medical situation, where there are nurses and doctors around to make them comfortable. Rob, Lancashire

My mother was able to die at home but only because of my persistence. She had a major stroke on 18 June and was in hospital for four days. She had signed a "Living Will" five years before and we knew her wishes, so she was not being artificially fed but just kept comfortable. When she indicated her wish to go home, the hospital made it appear an impossibility. Luckily I have friends in the NHS and was able to take their advice and through the "Fast Track for the terminally ill" was able to get her home within 24 hours. She had 36 hours in her own bedroom before dying. Jinny, Wales



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Bereavement 'raises heart risk'

Recently-bereaved people have heart rhythm changes which may make some of them more vulnerable to health problems, say researchers.

The University of Sydney study, released at a US heart conference, monitored the hearts of 78 bereaved spouses and parents.

They beat faster on average than unaffected volunteers, with more common periods of very rapid heart rates.

A UK specialist recommended check-ups for those with-existing heart problems.

It is known that the trauma of bereavement can mean an increased risk of heart attacks and strokes in the months immediately following the death of a close relative.

The Australian team asked people whose relative had died in hospital two weeks earlier to wear heart monitors 24 hours a day to try to reveal any underlying changes which might be contributing to this.

"Start Quote

Some bereaved, especially those already at increased cardiovascular risk, might benefit from medical review"

End Quote Dr Thomas Buckley University of Sydney

They found that the average heart rate following bereavement was 75 beats per minute, compared to 70.7 in unaffected volunteers.

However, this was accompanied by twice the normal number of periods where the heartbeat accelerated to higher than normal levels, called tachycardia.

This alone does not cause serious heart problems - rapid heartbeats can be a normal by-product of stress and anxiety.

Lead researcher Dr Thomas Buckley said that it might, however, be enough to trigger an attack in someone with pre-existing heart disease.

"While the focus at the time of bereavement is naturally directed toward the deceased person, the health and welfare of bereaved survivors should also be of concern," he said.

"Some bereaved, especially those already at increased cardiovascular risk, might benefit from medical review, and they should seek medical assistance for any possible cardiac symptoms."

Return to normal

The study found that, six months after bereavement, heart rhythms had returned to normal.

Dr Richard Stein, from New York University School of Medicine, said that the study was an "important first step" to understanding how bereavement could affect health.

He said that, wherever possible, the bereaved should try to take moderate exercise and seek out social support.

He said: "Understanding that this is a high risk time, perhaps paying a visit to your doctor, having your blood pressure taken, looking for other illness problems, is an important thing to do.

"In the context of grieving it's hard to do that, but the tragedy of a death of a loved one would be an even greater tragedy if it preceded your own serious illness."

Psychiatrist Dr Colin Murray Parkes, an advisor to bereavement charity CRUSE, said that it was important for bereaved people not to panic if they felt an increased heart rate.

He said: "An increased heart rate can be a perfectly normal response to the anxiety of being bereaved.

"If you are worried, then consult your doctor, but not with the assumption that anything is wrong.

"If you have pre-existing heart disease, then you may well benefit from a check-up at the time."



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Saturday, November 13, 2010

Brain cooling 'could save lives'

A treatment which cools the brain following a heart attack has the potential to save more lives, say US doctors.

Three studies presented at the American Heart Association conference found some patients recovered consciousness after several days on life support.

Current US guidelines may mean life support is turned off too early, they said.

UK experts say more evidence is needed to support the technique's use.

"Therapeutic hypothermia" is a way of protecting the brain, which is starved of oxygen after the heart stops beating.

If too many brain cells die as a result, the outcome can be fatal or highly disabling.

A variety of methods, for example cooling the blood with cold fluids, are used to bring down the temperature, and temporarily shut down brain cells.

In theory, once the heart has been restarted in hospital, the patient can be warmed up and hopefully emerge in better shape.

Doctors are still trying to work out which patients could benefit, and by how much.

"Start Quote

Further research is needed to confirm and quantify its benefits and to establish just which patients are likely to benefit. "

End Quote Professor Peter Weissberg British Heart Foundation

At the moment it is recommended that if there is no sign of consciousness three days after re-warming, then doctors should consider ending life support.

'Alert and conscious'

However, the evidence from the two US studies may put this in question.

One, from a Baltimore hospital, looked at 47 patients, and found that, after three days, none of the patients given hypothermia were alert and conscious, although by day seven, 33% had woken up.

Another from Minnesota hospitals examined 66 cases, and found a handful in which recovery began after the three day mark - one patient awoke after more than 10 days.

It suggested that continuing life support after three days could mean 10% more people surviving with little or no noticeable brain damage.

The third, a larger study of 298 patients receiving hypothermia treatment at a variety of hospitals, also concluded that there was a wide degree of variation in the time it took such patients to start recovering.

In the UK, while some hospitals have introduced therapeutic hypothermia on an experimental basis, it is yet to be accepted as standard practice.

Professor Peter Weissberg from the British Heart Foundation, said: "Therapeutic hypothermia for patients who have suffered a cardiac arrest is being considered at some hospitals in the UK, but further research is needed to confirm and quantify its benefits and to establish just which patients are likely to benefit from its use before it can be adopted as a routine therapy."

Dr John Griffiths is an intensive care specialist at the John Radcliffe Hospital in Oxford, one of those which uses the technique on some patients.

He said that there had been suggestions for the technique to be offered as standard practice in some cases.

He said it was still regarded with some caution, with no certainty that it could improve the outcome for many patients, either in terms of pure survival, or reducing the amount of brain damage they suffered.

He said: "We have to make sure that it fits with the way that patients are treated at UK centres."

One example was the concern that cooling could actually contribute to heart rhythm problems, a potential issue if the patient is being taken immediately into the operating theatre.

"There are lots of unresolved questions - who should do it, when it should be done, how it should be done and where should it be done?" he added.



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Friday, November 12, 2010

'Many cancer cases' detected late

Nearly one in four cancer patients in England is diagnosed only when they arrive at hospital in an emergency, a national study suggests.

The National Cancer Intelligence Network (NCIN), which looked at data from diagnoses in 2007, found 23% of cases had been detected at that stage.

In the cases of acute leukaemia and brain cancer, half of cases were only discovered at a critical stage.

Cancer Research UK said more education was needed to recognise symptoms.

The NCIN report suggested those who were diagnosed only at the emergency stage were more likely to die within a year than those diagnosed earlier.

Harpal Kumar, the chief executive of Cancer Research UK, told the Daily Telegraph: "The figure for diagnoses via emergency presentations is way too high.

"This statistic helps explain why we have lower survival rates than we would hope to have, lower than the best countries in Europe.

"Start Quote

We hope the government will seriously consider the best way to tackle this problem in their revised cancer strategy"

End Quote Sara Hiom Cancer Research UK

"We need screening programmes to be rolled out as early as possible and GPs given rapid access to the tests that will enable patients to be moved quickly through the system."

The survey suggested those on low incomes, elderly people and the under-25s were the most likely to be diagnosed at a late stage.

Only 3% of skin cancers went undetected until the emergency stage, compared with 58% of brain cancers.

Sara Hiom, director of health information at Cancer Research UK, said the late diagnosis levels were "alarmingly high".

She said: "We hope the government will seriously consider the best way to tackle this problem in their revised cancer strategy, which is due in the coming months."

A spokesman for the Department of Health said: "We are committed to improving cancer outcomes. Earlier diagnosis is crucial to match the best survival rates in Europe."

Last December, government cancer tsar Professor Mike Richards said the NHS in England needed to get better at diagnosing cancers at an earlier stage if it was to continue to improve survival rates.

He called for a greater focus on one-year survival rates, an indication that cancer was spotted at a treatable stage.

Have you had cancer diagnosed at a late stage? What was your experience? What can be done to improve the UK's detection rate for cancer? Use the form below to send us your experiences and comments.



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Nurses predict gloomy NHS future

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Peter Carter, Royal College of Nursing: 'In some trusts we're seeing a raft of ill-advised cuts'

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The NHS faces a period of job cuts, clogged hospital wards and rising waiting times, nurse leaders have said.

The Royal College of Nursing said patients should be concerned about the future - despite the health service escaping the worst of the cuts.

The union said it had identified almost 27,000 posts it believes are under threat in the UK and warned that services could suffer in the future.

But NHS chiefs said any savings being made should not harm patient care.

The NHS in England was one of only two areas of spending not to be cut in the recent spending review.

Instead, it was given the equivalent of 0.1% annual rises for the next four years once inflation is taken into account.

Ageing population

But the RCN said because of things like the ageing population and the rising price of drugs the costs for the NHS were rising at a much higher rate than that.

In recent months, the union has been asking for evidence of job cuts from its members as well as asking freedom of information requests and analysing board papers.

In July it reported 10,000 posts could go, but said this figure has now increased to 26,841, the majority of which are front-line clinical posts.

But the union said the true figure could be much higher as it was clear some trusts were not being transparent about their plans.

Peter Carter, general secretary of the RCN, said: "Right now, staff are not only concerned about losing their jobs, they are concerned about keeping services open and how they will cope if they stay.

Case study

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The situation at South West Essex Primary Care Trust could be the shape of things to come.

The trust is extending waiting times for routine operations by up to eight weeks as part of a �56m turnaround programme.

It is restricting access to a long list of hospital procedures, including tonsillectomies, cataract and hip operations. And it is stopping most IVF treatment.

The PCT has announced more than 200 job cuts with more to come.

Chief executive Andrew Pike says the measures are needed to bring local budgets back under control.

He says waiting times for operations will fall again as services become more efficient.

Unison is sceptical. The union says the plan is bound to affect the quality of care and that staff will not accept the changes without a fight.

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"The public should be really concerned about the potential impact to the NHS. I predict waiting will rise. It won't be too long before people start asking what is going on."

He said the cuts to local government budgets could lead to hospitals not being able to discharge patients because social services will be too stretched.

He also questioned whether it was right to be trying to make savings at a time when the NHS in England was undergoing one of its most ambitious reorganisations - primary care trusts are being scrapped and GPs given control over local budgets.

He said this could be a "recipe for de-stablilisation".

NHS chief executive Sir David Nicholson said staffing was a matter for local trusts.

But he added: "We have made it clear that efficiency savings must not impact adversely on patient care, and that every penny saved must be reinvested in support of front line services and improving quality."

The RCN also highlighted examples of waste that had been reported. These included issues such as TVs being programmed to come on when no-one is around to watch them and central heating malfunctions which mean they stay on all the time.

It even cited a rehabilitation clinic which had new wet rooms and height-adjustable baths installed at a cost of more than �60,000. Within months, services were moved and the facilities are no longer being used.

Shadow health secretary John Healey said: "This RCN report is an early warning of the strains that the NHS is under and looming problems for staff and patients."

BBC News website readers have been sending their reaction to this story. Here is a selection of their comments:

As a retired NHS nurse, my observations are that there has always been waste in the NHS. It is over-managed and over-specialised, with specialist nurses in every field but never actually of real value. As for the Royal College of Nursing they are all talk and no action. Cathy, Nantwich

Nursing professionals are probably in a better position to assess the impact of the funding freeze than any politician. This is another Con-Dem attempt to divert complaints and public anger away from central government, who implement policies at a local level where they have to adhere to it. Andrew, Birkenhead

Job cuts and NHS budgets are a real concern. I'm a third-year student nurse due to qualify at the end of this year and already having difficulty getting a job. One job I applied for, the post was withdrawn due to the funding for that job being cut. Adam, UK

With the cap on the amount trusts can earn through private patients being removed it means that as waiting times rise, those with money will be able to jump to the front of the queue as hospitals prioritise private patients over NHS patients. Once again, the poorer members of society are going to suffer the most. Alan McDermott, Worthing

If it is true that we are to lose vital front-line services, then this government should be put in the dock for defrauding the British public once again. As for Nick Clegg, he should hang his head in shame alongside Cameron for going back on their pledges. Geoff Shannon, Wirral



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Concerns over increase in rickets

More than 20% of children tested showed signs of the bone disease rickets, Southampton University Hospitals NHS Trust said.

Consultant orthopaedic surgeon Prof Nicholas Clarke checked more than 200 of the city's children for bone problems caused by a lack of vitamin D.

He was astonished by the results, which, he said, were "very reminiscent of 17th Century England".

Prof Clarke works for Southampton General Hospital.

He said vitamin D supplements should be more widely adopted to halt the rise in cases.

The crippling bone disease can lead to deformities like bowed legs as well stunted growth and general ill-health.

A lack of vitamin D can be caused by poor diets and insufficient exposure to sunlight, which helps the body synthesise the vitamin.

Prof Clarke said: "A lot of the children we have seen have got low vitamin D and require treatment.

'Middle class and leafy'

"In my 22 years at Southampton General Hospital, this is a completely new occurrence in the south that has evolved over the last 12 to 24 months and we are seeing cases across the board, from areas of deprivation up to the middle classes.

"There is a real need to get national attention focused on the dangers this presents."

He added that the "modern lifestyle, which involves a lack of exposure to sunlight, but also covering up in sunshine" had contributed to the problem.

"The return of rickets in northern parts of the UK came as a surprise, despite the colder climate and lower levels of sunshine in the north, but what has developed in Southampton is quite astonishing," said Prof Clarke.

"We are facing the daunting prospect of an area like Southampton, where it is high income, middle class and leafy in its surroundings, seeing increasing numbers of children with rickets, which would have been inconceivable only a year or so ago."



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